He rarely asked me questions, other than the perfunctory, “And how are we today?” The vague, elusive, imagined “we” of that sentence always felt like a large void that yawned open between us. Nonetheless I tried to insert myself into the conversation. “But how much will it cost?” “But I don’t want to do that.” It was a struggle of making myself not only have a presence, of making myself be seen and heard and understood, but of persuading him that mine was an important presence, one that mattered, one that he had to consider as much as I had to consider his.
A note I wrote down in the hospital: “What am I doing here? Malingering, lingering.” Being chronically ill often feels like all I really have, which is to say all that I own, is radically temporary—a lump of painful, decaying, remembering matter whose existence is composed of different strategies for lingering.
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